Ava resting up before the big journey home.
It feels marvelous to be home. It felt surreal to drive home today. I was half expecting to wake up and find I was dreaming.
I first want to thank Ava’s doctors- Dr. Shilyansky & Dr. Pitcher, Josh her NP, Karen our cordinator, Jean our dietician, Cheryl &Marylyn, our home health care co. nurses and everyone that helped get us home. They really listened and put Ava’s HOME needs above their medical feelings. I am so grateful from the bottom of my heart. I know most of them thought I was doing this too fast BUT you should see Ava tonight. I have my happy energetic daughter back!! They all tried to convenience me it was too much work. As I gave her two of her antibiotics tonight and mixed up her TPN bag it ALL came back to me. It is just like riding a bike once you learn you never forget. The joy I have can not be expressed. Happy is far to gentle of a word. It feels great to be home with Brian and the girls.
Ava was very hesitant to be happy leaving even after we got out to the Suburban. I think she fears for what is always next. She is uncertain and therefore very skeptical.
Exhaustion always hits me when I step through the door. It is like I keep my strength up until I know I have done my job and she is safely home. I really hope she sleeps well tonight, we both need it badly.
Here are a few pictures of the girls.
“Praise God for this wonderful anniversary present…….we will never forget this night .”