Here is a video I threw together early this morning. I didn't sleep well at all last night so I got up very early and let Brian get some much needed rest. She finally laughed ad smiled at Brian and I last night. It was so cute. I captured a bit of it in this precious video. We thank God for her healing and that slowly, day by day, she is getting stronger and her body is healing. As you can see at the end of the video she started hurting again. She threw up last night so her tummy was bothering her. We were just thrilled that she did smile and laugh for us!
We took her on another "race car" ride last night, when she started feeling better, with our nurse Marta. We love her because she talks to Ava and asks her questions. Ava is so sweet she answers her by shaking her head yes or no. I really think she understands everything Marta says. Marta is always concerned about Ava's pain levels. We love that about her! "Thanks nurse Marta!"
So we took her off the nasal cannula yesterday but her heart rate keeps creeping up. We now have O2 laying beside her blowing in her face. She doesn't like it but we ask her if she wants the nose thing back in and she shakes her head no. We will see how it goes today. I just don't like her heart rate in the 150's when she is resting.
I'm not sure when the swallow study test is today. We are praying it goes well. Can you imagine trying to keep food away from a two year old? I can't! Thanks for your support and prayers. The sun is shining in the window here and it is going to be a gorgeous day!