Today was spent worrying about her pee out put. This morning we were concerned because she was really not giving us enough urine. Her body is just working so hard to fight off infection that it may not be relaxing and performing right. Oh dear I told Ava could you just give us ONE stress free day? Huh?
She is still pretty heavily sedated. She received her fourth blood transfusion tonight since her recent repair. Her body can't seem to build up the count fast enough. They tell us this is pretty typical after surgery. We are begining to know why we went to CHOP now. I can't remember but one time that infection came into play there. It seems every day we are concerned over another "infection" plaguing her little body. I worry constantly. I know it may be a coincidence but I guess I am just tired of constantly having to double check everything. I have to question whether things are being done right and if they will hurt her or help her.
I do love the staff here. Dr. Volk and Dr. Moreland are both wonderful doctors that just happen to be woman. They really listen and soak up all the information or imput little ol me gives them. Our nurses are also great.
Her IV expired in her foot so they had to reinsert a new one in her left arm. Her picc line they put in this last Friday went in her right thigh. They are weaning her vent setting slow. Right now they are at 40% O2 Peep- 10 SIMU rate- 30 and her PC above peep is 18.
They also started her on Dilaudid and are thinking of giving her dopamine to help with her urine output. Perhaps tricking her body into thinking it has to go pee pee.
Okat so let's please pray we have a restful night and that tomorrow we only see steps ahead. Thanks for your support!