Well a lot has happened in just one short day. First her belly is going down slowly but surely. It is still large but it is looking better.
The skin doctor was here this morning and she removed the mesh that was covering her skin graph. It looks like it is healing. I am to put mineral on it many times a day to soften and loosen the skin so it stays moist. Her head is healing and her hair is growing much faster thatn I expected
She has been extubated for about 27 hours now. Her blood gases were running in low 50's and still are but all her other numbers are looking great and expected with what she has been through. She stays between 93-98 percent. Her O2 was turned down this morning but then put back at 3 liters this afternoon.
Yesterday she was really labored in her breathing. Her nose would flair and her pectus (large indent/cave in) in her chest would sink way down. Also er head would bob up and down while breathing. BUT overnight she seemed to turn things around. It could have been that she stayed up all night playing with her Daddy. We think she might have her days and nights messed up! I know Daddy doesn't mind. They read books, look at the musical cards and watch Barney. Here is one of Daddy's pictures of their adventure in the middle of the night.
Another HUGE accomplishment was that she got her chest tube removed this morning!!! YEAH! That is a great sigh of relief. It hurt her really bad but she coped well.
Now as for coughing, she is not great at this at all. We have been suctioning her out since none seems to come up on it's own. I know her throat hurts but she must get it up. I decided this morning to try ice chips. They will relieve pain in her throat and maybe let her cough without too much pain! It worked. The docs thought that blowing bubbles would do the trick but they don't understand she is still too little to do that. She is learning.
So this morning all we did was play. She loves to watch bubbles so I blew and blew. Then it was her turn. She is so cute!
Thanks for all the prayers. I'm praying that Miss Ava has turned this around. PLEASE Ava no more drama!