Monday, October 6, 2008

Very Sacred

I thought I updated here to but I guess it was only her carepages last time. ( name avahelmick) So here is the latest. You can see some new pictures at her carepages site.

I did get a few good hours of sleep. Unfortunately I woke up to her monitors beeping and Brians fearful, concerned eyes. Her stats were hanging in the upper 80's. They had decided to lower her sedation because they were not seeing urine output any more. She started to wake up and not like the tube in her mouth. I instantly started talking to her and telling her she was going to be okay she just needed to let us fix her up and I promised her that we would get that tube out soon. I really hope sometime today. I know how Ava's mind works. I was really starting to get scared that she was going to stop fighting because all they were putting her through. I then decided to quicky turn my talking to a much lighter subject to her her feel normal even though she is feeling so crappy. I went through all the animals she loves and reminded her what sounds she would make and what signs she would use to discribe them. Her stats went higher so I know she was comforted. I went through one of her favorite episodes of "Little People" where Eddie met Freddie. We sand some Barney songs. Her favorite of course, "I love you, You love me." Then I told her how she would give Mommy and Daddy a big hug and kiss. I started to get really emotional but I fought back tears and the urge to cry. She needs us strong more than ever.
They checked her cathiter and it was clogged so then her heartrate went down to the high 160's, so that must have been when you she was stressed.

Wow I still can't believe this is all happening. It is so hard to wrap your brain around all of it. Please pray that God can help us stay strong and that she can get extubated today and start to feel a little better. I'm very scared for her. Just about a half an hour ago I was afraid we might lose her. I can't lose my baby.

Thanks again for all the messages they help so much. I go back to the room and tell Brian about you all and your loving support.



Walker Family said...

You are doing all the right things.I know singing always makes us feel better. We are saying lots of Extra prayers that Ava is able to stay comfortable and the tube will come out soon!
Katherine, Dave and Benjamin

proudmom said...

I am keeping all of you in my prayers.
Stay strong Ava!

God Bless all the CDH babies.

Owain's mommy said...

first thing I did this morning is check your blog. Ava and your family have been in my thoughts and prayers for days. Ava is a strong little girl she beat CDH once she can beat it again. This is every parents nightmare of a child born with CDH. I am so sorry that Ava and your family have to go through this.

Stay strong


Liz and Shane Nelson said...

We are thinking of you. You are an amazing mom and you have given me so much strength with Nayeli. You are strong and God will help you through this as he has in the past. Hugs and Kisses to you, Ava and Brian.
Liz and Shane

mummy to angel SKYLA said...

I am thinking of your family and Ava at this hard time. Ava beat CDH before, of course she can and will beat CDH again. Hang in there mum. You have a tough little girl there. Lots of thoughts and prayers comin your way.

Kristy, mum to Angel SKYLA