Well Ava is back on the ventilator. She did awesome over night. Iactually got good rest for the first time. Her dad watched her and she did great. So today my sisters came and took me out for a late lunch and I also got my hair cut while we were out. It felt so good to leave the hospital and see the beautiful day.
When I got back things went crazy. They finally took off her pic line dressing that I had told them about since three days ago. Ava is very allergic to tape and this pic line dressing has antibodics in it in a jel pad. Ava had a severe reaction to this cover. She has 2nd degree burns on her little arm. I was beside my self.
She was on bi-pap all night and we decided to take it off and let her sprint off to see how she would tolerate it. After about an hour she started destating a little and I said I wanted her back on. We put it back on her and she really stated destating further. The leak from her chest tube started bulging out. We took her off and to make a long story short they put her on high flow nasal canulan. Her stats stayed steady but her lung xray showed she was not getting better and that her lungs might collapse. The incision infection needed attended to and she needed a new pic line. The ventilator will give her a few days to heal up and also let her rest. She can have more powerful pain meds.
I told the surgeons that I have a very bad feeling putting her back on the vent but if they thought it was the only thing to do then I was placing her in their hands and ultimately God's.
I really don't have any emotions at this time. I feel a sense of real peace I had when I was in the nicu with her and I gave her to God then. So we wait and see.
Please pray for Ava. She is so strong but her lungs and her heart are growing tired. I don't know what to say besides I love you all for thinking and raising her up to God. I know He has the final say in her existance. We need her with us. I'm hopeful that this will give her the break she needs. But pray specifically that she won't give up when the machine takes over and that she will work with the vent to get better.