Friday, October 24, 2008

Princess Ava

Ava had a very good day. We love steady! See Fridays always concern us. Her worst days have been on Fridays. So far so good!

Right now she is getting her 7th blood transfusion. Her count was a little low so on we go! Those of you that know me will think to yourselves what can Terri do with this part of the process? Perhaps I will have to have a blood drive in Ava's honor. How many would be willing to give blood for a baby? Okay let's get her out of the hospital first. I loved doing her Awareness Walk. We will continue that each and every year.

So as for extubation, we are going to wait a few days. Her meds are still pretty high and the doctors are waiting for her to tell them that she is awake enough to breath all on her own with no threat of exhaustion. The last thing we want is for them to have to put the tube back in her throat.

Today they changed Ava's stomach dressing. Wow was that ever gross. I don't really like gorey things but in the case of my daughter Miss Ava I have put all other things aside and I have to know what is normal and what is not. SO I must look! Yikes! The old dressing got stuck on a suture and wow did Ava panic. It looks a lot better and less bulky.

I want to thank the Billheimers for the beautiful bracelet. Mindi it is out of this world and HOPE that is our Ava! That toped my day! Here is the pictures of her adorable bracelet. Thank you Denise for the beautiful angel beenie. Also this is Ava very comfortable. She's not so lady like here.





Thanks again for checking on our sweet Princess Ava.

~Terri

4 comments:

Nancy L said...

I am so sorry that you are all having to go through this rough time. What a tough fighter Ava is! You do not know me, I have been following from Brian and Cassi Reed's blog for Angel Eli (my great-neice)but I wanted you to know there are others out there praying for you. The Franciscan Sisters of Mary also have a prayer chain and I will ask them to add your precious Ava and your family to their prayer list.
I know how difficult it is to see your child without hair. My son was not sick, but wanted his head shaved when he was 7 and my 14 year old daughter shaved it for him while I was at work. I went to pick him up from a ball game and drove on home since I didn't recognize him and had to go back to get him. I would get up in the night and just stare at him. It is just such a shocking change. Ava has a beautifully shaped head though and she looks beautiful! I hope her skin grafts go well and she continues to recover. Hang in there.
Nancy

Nimkee's Mum said...

Terri and Brian, I am in awe of your strength and ability to remain so positive. You are an inspiration to all who come in contact with you through your sweet girl Ava.

What a courageous fighter she is!

I am saying lots of prayers and sharing her story with as many as I can.

God bless,
Love, Peace, & Nimkee blessings to you all,
M xxoo

My Three Sons said...

I'm still praying for Ava to have a speedy recovery. The pictures of her are so precious.
As hard as it may be, keep your faith. God will pull you through this.

Dawn T. said...
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