I don't really have a good update. She was exubated last night at 7pm. She did great with it at first but then her heartrate never slowed. It was over 200 for most of the night. She is not responding to Brian or I. She isn't opening her eyes. Well she did twice but I could tell she didn't know who we were. All night long we both stayed by her side, She tossed and turned. The pain I'm sure was unbearable. Her belly is really swollen and she can't cough up the junk in her lungs. Getting her to settle down is a major task.
So they took just took an xray and if this one shows more of her lung has collaspsed she will be put back on the vent. I am beyond sad and disbelief. To see a newborn struggle is very scary but to see your child that is full of life five days ago fight for her life is just unbelieveable. Her belly is really big and I'm so afraid right now. I have a strong fear of losing her and it weighs heavily on my mind.
I begged God last night to settle her and to lower her heart rate. She just can't get any rest. I knew it would be hard but this is almost the worst pain I have ever felt. To stand by and watch her thrive in pain and discomfort is nonhuman.
The girls came up last night to see her. I know they were sad. I'm just waiting to learn the side affects of this time around.
I have to be strong around Ava. We talk about all kinds of things. When there is a procedure I'm right there telling her how lucky we are to be her parents and how strong, wonderful and amazing she really is to us.
Please pray for her she is in a very bad place.