Wednesday, October 8, 2008

Exubation yet she is struggling.

I don't really have a good update. She was exubated last night at 7pm. She did great with it at first but then her heartrate never slowed. It was over 200 for most of the night. She is not responding to Brian or I. She isn't opening her eyes. Well she did twice but I could tell she didn't know who we were. All night long we both stayed by her side, She tossed and turned. The pain I'm sure was unbearable. Her belly is really swollen and she can't cough up the junk in her lungs. Getting her to settle down is a major task.

So they took just took an xray and if this one shows more of her lung has collaspsed she will be put back on the vent. I am beyond sad and disbelief. To see a newborn struggle is very scary but to see your child that is full of life five days ago fight for her life is just unbelieveable. Her belly is really big and I'm so afraid right now. I have a strong fear of losing her and it weighs heavily on my mind.

I begged God last night to settle her and to lower her heart rate. She just can't get any rest. I knew it would be hard but this is almost the worst pain I have ever felt. To stand by and watch her thrive in pain and discomfort is nonhuman.

The girls came up last night to see her. I know they were sad. I'm just waiting to learn the side affects of this time around.

I have to be strong around Ava. We talk about all kinds of things. When there is a procedure I'm right there telling her how lucky we are to be her parents and how strong, wonderful and amazing she really is to us.

Please pray for her she is in a very bad place.



Taryn said...

I wish I could be there with you guys and Ava! She will get through this, she will! I believe that she's strong enough to! *hugs*

Liz and Shane Nelson said...

I wish I was there to give you a big hug! You have been there for me. Remember everything you told me. You are strong! Ava is an amzaing little girl. She was born fighting! She will fight this and get throgh this with God holding her hand. We are thinking of you and praying for your family.

mummy to angel SKYLA said...

keep on fighting Ava. You are so strong darlin. You can do it. You can beat this again. Lots of prayers coming you way. Hang in there mum and dad.

Kristy, mum to angl SKYLA LCDH

Darcy said...

I am so sorry that Ava is struggling so much. I can't imagine how heartbreaking this is for you. I totally understand what you say about the difference between your newborn and your child that you have had home with you. I will lift you, Brian, Ava and your other two girls up to the Lord for peace strength and healing.
Romans 8:26-27
In the same way, the Spirit helps us in our weakness. We do not know what we ought to pray for, but the Spirit himself intercedes for us with groans that words cannot express. And he who searches our hearts knows the mind of the Spirit, because the Spirit intercedes for the saints in accordance with God's will.

A simple being said...

keeping updated with ava's recovery, i do hope things start to get better for her,im so sorry that this is happening to her and you guys again having the feeling of not being able to help a parent you should just be able to fix things for her. i will conitnue to pray and hope for the best outcome.

Lori said...

I haven't really been able to read BOH lately, but I saw something had happened to Ava and had to find out. I am so sorry that this is happening to you guys. It is so terrifying to think that this can happen when you think they are out of the woods. I truly hope she starts getting better very soon.

Isabella's Mom

Gina said...

We have all of Wyatt's blog readers praying for Ava. CDH babies are tough fighters:))

Wyatt's Mom

My Three Sons said...

Hello, I came across your blog through Kellie, Brad, and Baby Carter. I have a two year old who has severe asthma and when I look at your pictures, it just hits really close to home since they are about the same age. I will be praying for you and your family. God will be with you and Ava every step of the way. I will put you on my blog roll so everyone else can visit and pray for your beautiful little girl.

Praying for you,


FaithCDH said...


I just wanted to let you know that I am praying hard for precious Ava! She is a strong little girl. Big (((((((hugs))))))) to you and your family. I imagine that this is very difficult.

Remember to focus on the small things.

Love and prayers your way,

amy miles
mommy to one that flutters by

Grandma Reed said...

I pray that Ava starts settling down soon and heals quickly so she isn't hurting. Watching your little one hurt is just unbearable.
God give Ava and her family strength to get through this. Help us not to feel so lost trying to cope with CDH and all the other defects that leave us wondering why. Amen.
I'm sorry I do not have any comforting words. I will be praying fervently.

Dino K. said...

Our thoughts and prayers are with Ava. She is a fighter and an inspiration.

Kyle, Aimee and Ava said...

Sending prayers from Utah for Ava and your family!

Jason said...

I think we parted ways a long time ago but I do want to say that I will pray for your child.
I want to tell you that when my kids leave my home I tell them Hedge of Protection ...we will pray that for Ava. Psalm 91 and Eph. 6...
Lise Dill (Jason unionrunners mom)
Mom To Grace(cdh) brady and hannah( premature)