Hello to All! So Miss Ava has a new problem we learned of last night. The last three days or so I've been noticing Ava grabbing her at her bottom. Her bottom started getting red, irritated,and a tiny bit of blood. I asked them about it at the doctors on Tuesday. They told me to put cream on it and it was probably a rash. That didn't settle right with me although I did give her two suppositories the other day (per docs orders)to try and get her to pass her stool. (It didn't work.) Yesterday she wouldn't keep her pants or diaper on for nothing and she was itching so I called our local doctor. They got us in before the nightly "crowd" arrived to avoid germs. I was so happy to see that our favorite Doctor was there. They did a swab test and she has Perianal Streptococcal Dermatitis. In easy terms, Strep in her butt. Can you believe this? I called Josh in Iowa City and he felt bad. He said sometimes we forget she is a kid and she can get the very normal things as well. So for her treatment we are going to try and give the Amoxicillin through her NG tube. It has to stay down for one hour to get into her system. We did get an cream as well to double whammy it. Pray it works and fast. This may have been a big part of her problem the last few days.
Last night she slept a tad bit better. She still woke about 5-6 times whimpering. Poor baby girl but at least she wasn't crying. I suctioned only when I felt she was getting nauseous yesterday and last night. I got 500ml's out. Her urine output is on the low side so we are going to start her bolus hydration today. She is not dehydrated but they think she is using ALL her TPN to keep her hydrated and then there is not so much pee. I hope this makes sense as I was a little alarmed last night that her diaper wasn't soaked like normal. (Okay I just felt her diaper and it is pretty wet so I feel better. She is still sleeping.) She thought it was time to wake up at 6am this morning. Yea, not so good for Mommy.
On a good side, if there is one, she only threw up once yesterday. Naturally it was in the car on the way out to the doctor's office. Oh and I had no bucket. Her blanket caught it all!
We are hoping she starts to feel better soon.
Thanks for your prayers and messages. They truly help me in a way you will probably never know!