So hello and I know I promised an update the other day but wow have we been busy. On Sunday I decided to tackle painting my bedroom. (My Mother was gracious enough to help me.) It is very large almost the entire length of our house. It is like 30 feet by 15 feet, very large and MANY walls. But it looks so much better. OH and we also brought out her toddler bed. I wasn't sure how she would in it, but she loves it! Plus it makes life easier for me as well! So she's a big girl. now!
So now to Ava. She is really doing well. The antibiotic is doing it's trick and she is healing nicely. She is still on suction a few times a day. If I see that she looks like she is getting nauseous I suction her and then the sickness passes. BUT she still manages to throw up 1-3 times a day. This is the best she has done so far! She is pooping too! I was getting green intestinal bile but now it is either clear or yellow, which means things are passing through at a slow rate BUT are going through! She doesn't have an appetite lately this bothers me. It is expected sad to say. Her canister (suction) output is also slowing down. The last four days all I've gotten out was 300ml's TOTAL!
Her stomach is also getting smaller. I swear by this suction machine. It is taking all the gunk and air out of my baby and making her feel better. Here is how her tummy looked a few hours ago at dressing change. The wound is closing nicely!
In case you are interested this is her Hickman line without the dressing. And not that is NOT blood it is beodine. I change it 3 times a week since she has an allergic reaction to the Chroraprep. (Normally a line dressing would be on a 7 day change. Not lucky me!)
So we are hoping to take this month slow and then get her into surgery, early February. She is an amazing little girl. She is always so happy. She loves life and she loves her family! Enough talk here is a few more pictures!
Thanks for checking in on Ava! God bless.