Ava is having such a hard time with all of this gas. We are done with the Flagyl until next week. I decided to rest her tummy today and no formula. She ate mac and cheese on her own today along with a few noodles. I also gave her yogurt in her g-tube. Her tummy was quite large last night….53 cm’s. I got all of the extra air out with a syringe . She felt better. I also started simethicone drops for her tummy/gas pain. I'm not sure they work but I can't just do nothing.I had her on Pedialyte most of the day yesterday as her tummy was puky but she onlt threw up about 65 ml’s. Most of the night I set her g tube to drain as her stomach rumbled like loud thunder…..then she would get bad cramps. She rolls over to her right side to help alleviate the discomfort.She whines and cries then drifts back to sleep. Then this morning her stomach measured 50 cm’s….that is much better but still higher than normal.
I am so frustrated. What is going on? I understand the bacterial overgrowth theory but why so MUCH gas? This is ridiculous. She looks like a pregnant lady, no kidding. She never complains unless she knows she is going to get sick and then she puts her head down and gives me those puppy dog eyes. It kills me that we can’t help her. I know we will be back in the hospital as she is now 24 pounds. I just hate to have to go back. For one she knows the hospital means “pain”. Number two the germs…everyone that enters our room could bring something in. No matter how many times I use the wipes on the door, knobs, chairs, bed rail, computer, and every other touchable thing in the room. I fear leaving the room to get ice for fear I will bring something in on my clothes. Oh and Number three it just pain stinks to be away from my family and my house. As I write this my eyes fill with tears. When will this end for my baby?
Then part of our family just doesn’t get how sick Ava truly is. They ignore it as though she is fine. I panick when anyone enters the house that does not wash their hands. I HATE living life like this but we have NO choice. She must be protected. I thought I would get better after her line was removed. I haven’t.
I want to thank my cousins Mindi and Heidi for getting me out of the house. We went to see a movie and boy did I need to get out! Brian was happy that I got away although he became a wee stressed. She is still alot to handle.
Please pray that this tummy gas leaves. Ava is a trouper. Now if I thought she was in a lot of pain we would already be at the hospital. She is handling it all but I am waiting for it to get worse. Her tummy measures 52 tonight. Her heart rate has been good. I tell God if she needs help now let her heart rate show me as He has done each time before! Pray for Ava.