So Miss Ava is taking a step backwards. The last few day we have noticed her tummy is becoming louder. The grumblings are stronger. This is a warning that the bacterial overgrowth is picking up steam. Her tummy has been measuring bigger but then it wil go back down over night. Well last night she awoke many times I would hear her stomach grew really loud, then she would cry for a second then go back to sleep. I’m pretty sure she gets bad cramps. I knew the next sign would be the “water running sound “ her stomach does with this overgrowth. Then would come the vomiting stool. Oh how right can I be? At about 5 am she started the water sounds then started gagging. She finally threw up the stool at about 8:30 am. So here we go again.
I have called Iowa City and are waiting for them to call me back. I asked for a new antibiotic. I swear the drugs stop losing their effectiveness to fight the bad bugs or they fight all they can and can do no more. I feel like screaming.!!!
I know we back off food (she still is hungry and wants to eat) and start the process a over again. I am running Pediatye through her g tube. My hope is to avoid the hospital like we managed to do about 10 days ago.
So I’m in that “not again” mentality. It is clear her obstruction is getting the best of her. I just can not bear the thought of having another surgery. This is so unfair. At her last appointment I sat there thinking of all the sick kids that were all there that day. I kept wondering why this happens….why does God allow so much pain in children? Then I came to a thought. Is one of the reasons so that doctors can learn more….therefore eventually saving more kids? I know there is a plan or lesson to be learned in all of this……but why must Ava suffer?
If only you all could hear my prayers the last few nights to God. If we adults are sick we run to the doctor and beg for medicines to make it go away. In Ava’s case and many complex kids, they have no answers as to why things work and why sometimes they don’t. This has to be the most frustrating part. She can’t talk so it is hard to know what she is feeing. I do know when she cries she has had her limit. Ava is so amazing. Right now she is watching Elmo. She smiles and laughs at the funny parts. She has just learned what “humor” is….or so she thinks!
This is last night. She loves snuggling with Daddy.
I guess all we can do is pray. Thanks for the support.