"Best buds! She is stuck with me and I'm with her!"
Hello Everyone! Ava had another great day. We took a couple of hours break from her feedings so she was unhooked for about 4 or so hours. She is supposed to be hooked up to gtube feeds for 24 hours BUT she is still getting 100% TPN nutrition so I figure a kid needs a break. Here are some pictures of today.
I became hungry at about 1pm today and started to pour my cereal in to a bowl, Ava looked up and pointed. I asked her if she wanted some. She shook her head yes so we both sat down and ate a bowl of cereal. She ate about 5 bites (she chewed and swallowed!) then drank all her milk. I sat there just starring at her in amazement! WOW.
I upped her feeds to 13 ml's today. She only threw up about one ounce at about 6:30 right before supper. She still ate her pasta though so I was so glad. Plus we have poo pies a few times a day. We are working on potty training. This is not easy. The other girls were very easy. Ava she gets afraid of things...huh I wonder why she is suspictious of everything!
Then Dr. Ava came to visit me to check how I was feeling. (I was fake sick!) She is so smart she knows exactly where things go. She was in the hospital way too long in her short life. It makes me smile all she knows!
Lisa this is for you. (Lisa is Ava's home health care nurse.) How many kids know where to put the stethoscope when giving a manual blood pressure? I didn't tell her anything she just did this and I took the picture. She learns from the best! Thanks for taking care of Ava so we don't have to go to the doctor.
A lady has to get her bath and play with her toys, right?
Ava happily playing her "Guitar Hero." Oh how she missed this game.
My cutie putootie! Don't you love her head band? It's Minnie ears/hair.
"I ate five pinwheel pastas. Isn't that great? Mommy is so happy."
Ava has the longest tongue I have ever seen. She loves to show it.
Her tummy is healing better than I could have ever imagined. Her mickey button is also doing good too.
Lexis and Emeline are getting worse not better. We decided to take Emeline to the doctor. The nurse asked if it was an emergency. I felt like exploding on her saying this, "My daughter just got out of the hospital and my husband works two jobs, and this is the only night he has off, and I can't leave Ava. Emeline is cold and clammy and coughing her head off, so YES this is our emergency." Why can't people just be nice?
Lexis is throw up sick now. The doctor said Emeline has Strep again and her lungs are probably on the verge of pneumonia so she gave her steroids plus she has to continue her breathing treatments. Oh and she has dandruff! So she has lots of new medicines. I just have to keep them all away from Ava. I've been going nuts with the wipes every where. Call me crazy!
Please pray that Ava stays well in the midst of all the sickness at our house. We can't afford an illness right now.