Today is a wonderful day. This was the day Ava was born. I remember being so terrified of all she would have to endure. She was not allowed to take a breath on her own. As soon as she came out she was lifted up so Brian and I could see a glimpse of her then she was whisked away quickly to the adjacent room. She was hooked to so many tubes and wires. We prayed so hard she would survive. We knew her odds were not that great but we also knew that God was in control. No matter what happened this was our daughter and we were doing ALL we could to save her.
More times that I want to count we nearly lost her. I remember leaning over, looking at her tiny body. I made a vow to her whether she lived or died I would do all I could do to make others aware of what Congenital Diaphragmatic Hernia. This birth defect does not discriminate. AND still to this day the survival rate is only 50/50. Each time I hear of another family getting this diagnosis my heart drops. We know the pain. We know the fear. We know the hope that exists in the soul of the parents, family and friends.
I decided to do another video to celebrate Ava’s fight this last year. She has been such an amazingly, strong little girl. She absolutely loves life. I am honored to be her Mother. She has made me pay close attention to details and to never take a single moment for granted. In this video you will only see her happy and smiling face. Ava gets very sad when she sees pictures of her sick. (me too) SO this is a fun video celebrating all she has accomplished.