Thursday, June 23, 2011

Yearly CDH Check-up

Hello everyone. Ava’s check-up was today. We woke up very early and traveled to the hospital. It is an hour and fifteen minutes from our home. When we got there I explained that she was going to have a test but that it wouldn’t hurt. The lady gave her the contrast drink for the CT scan and she was very unsure of whether she wanted to even try it. Brian told her was okay and after a few minutes she took a sip. “Pretty Good.” was her reply. (Pictures are taken from my cell. I realized when we got there I left my memory card at home…)


She drank it up within minutes. She did great with the CT. It is like she’s done it a million times. Sad thing is she has had too many and just knows!




A little apprehensive but she still enjoys the ride.


So then we had to go to the appointment with Dr. Shilyansky. We waited for about an hour in the waiting room. Thanks goodness they had Toy Story 3 playing!

We had to burn an hour so we went up to see the Children’s Hospital museum. It has some pretty cool things in it.


This was us discovering another cool place in the hospital. This was a secluded part of the hospital that had a ton of windows and many stairs… very pretty.


Here is the toy she picked out for doing the CT scan. She loves Horses!


She sees the wipes and can’t help herself! So I’ve taught her right.


Her NP Josh and Dr. Shilyansky was very impressed by how much she has grown. She weighs 33 pounds. She is in the 15% for her weight and 87% for her height. The CT scan results came back and they found nothing abnormal. He showed us her patch (on the CT) and how it looked very secure and right where it is supposed to be. They were so pleased and amazed at her progress.

It makes me feels so relieved. ALL she has been through and all she’s overcome. I’m super proud of her.

Here is Ava just 2 years ago. So much good has happened. I’m thrilled to be done with her central line and her g tube. She is truly a Miracle!

Ave June 2009

Many times we take our health for granted… If you are healthy this second, cherish it! God is good! Thanks for your continued support, love and prayers!

I’ll leave you with a picture I took of her yesterday at the Zoo. She’s our Butterfly!

Ava at Niabi



sarahkolfage said...

Wow, I'm so glad the visit went well. Your daughter is so beautiful. It's sooo refreshing to see a baby girl who has survived CDH. We are so close to giving birth, and I'm scared. God bless you guys, always. Sarah

Randomosity said...

She is so precious! I love the pictures. The one where she is on the steps, she looks SO far away. :) The children's museum looks awesome!