Hello Ava friends! Many of you know I started a face book page for parents with congenital diaphragmatic hernia survivors. Well today marks our 3rd Birthday! I am so excited as the page has over 1500 followers. I decided to start the “Living with Scars” project to educate people of congenital diaphragmatic hernias. I asked parents to take a picture of their child’s cdh scar and post it on face book. I also asked them to tell us what they thought about when they see their child’s scar. CDH is such a battle and still to this day the success rate is only 50/50. Not good odds. I’m thrilled though the page is doing so well. I attribute it to so many wonderful moms and dad that give what works for them to help others!
Here is Ava’s. I’m so proud of her!
What do I think about when I see my daughter's CDH scars?
I have a feeling of complete gratefulness that she is here with us today. I feel very BLESSED! It shows how hard she fought to survive this birth defect time and time again. I think of her courage and strength and how hard it must have been for her. It reminds me never to take life for granted, that we are never assured tomorrow. I know that her scars are just part of who she... a fighter in all sense of the word. I am SO proud to be her Mom!
A Diaphragmatic hernia is a birth defect in which there is an abnormal opening in the diaphragm allowing part or sometimes all of the organs from the belly (stomach, spleen, liver and intestines) to go up into the chest cavity, compromising the heart and lungs.
If you have a CDHer and want to get involved in this project please visit our page today!
https://www.facebook.com/raisingcdhkids
Ava’s been doing much better after her bout with the stomach flu. She did end up losing 3 pounds which is pretty drastic for her but we will gain it back slowly but surely.
Schools been going great and yesterday she came home with an AWARD. I was so happy for her. It is a gift certificate to Wendy’s signed by her principle and her teacher.
I also happen to grab the other two girls and get their picture taken as well. We’ve been so busy these days I don’t take near the amount of pictures we did before. We are still helping out with my sister’s twins so life has been a little nuts lately!
We are so proud of our girls!
Thanks again for dropping by… we appreciate all the support and prayers!
~Terri
5 comments:
Terri....
I am glad that Ava's all better from the nasty stomach flu!! Losing weight during this illness is "normal" as she was not keeping food down!! I am praying that those three pounds are gained back!! ;)
Congrats, Ava, on earning your award!! You go girl!! ;-D
Happy third birthday/anniversary to your Raising Healthy CDH Children Facebook ministry, Friend!! I saw it this morning and love, love, love the idea!! Scars are beautiful!! I will have to swing on by again to see who else has posted their CDH tummies!! I do not have a Facebook account--although some argue that I should!!--so I cannot partake in this. But I am also a super modest person and probably would not want to post any pictures of my stomach, anyway!! Oh well!! But here is something which I wrote about my CDH scar!! Oh yeah. It is taken from my never-going-to-be-published Life Story!! Enjoy!! ;-D
"Across my chubby abdomen is this lengthy surgically-created scar. Again, an indelible, visual reminder of a medical history which I--or nobody--had any control over. I have often found myself referring to this physical blemish as my battle scar. Which is not at all an inaccurate description!! Not at all. For this scar is an "imperfection" serving as evidence that I am a survivor. Somehow. Yet, I can touch this abdomen scar--run my fingers all the way down it--as an incredible reminder that "I've come a long way, baby". Because I have. See, I do not need any reminders to glance upward and thank God for my existence. An abdomen scar suffices just fine!!
Either I am "hard to kill" as that phrase goes, or our Loving and Sovereign God was watching over me. How about both?"
--Raelyn
523Terri....
It has been over one month since you last posted on this Blog!! I am missing Ava, my Kindred Spirit CDH Friend!! Life has been seemingly busy for me lately. I wrote a fictional children’s story for March which was posted on my Blog, “Minuscule is good!”. We have been watching my two-year old niece, “Amethyst”, once a week. How are you, Friend? ;)
--Raelyn
Terri....
It has been over two months since you last posted on this Blog!! I am missing Ava, my Kindred Spirit CDH Friend!! And her sisters, as well!! ;)
Love you later, Raelyn
Terri....
It has been over three months since you last posted on this Blog!! I am missing Ava, my Kindred Spirit CDH Friend!! And her sisters, as well!! ;)
Love you later, Raelyn
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