Hello Ava followers! We took Ava to her Pulmonary doctor this morning in Iowa City. I was wanting to learn why her oxygen levels were not staying up due to her colds. He was pretty confident by reading her history and hearing her cold regime that she has Asthma. It really didn’t come as a huge shock as we know her lungs are not the best due to her congenital diaphragmatic hernia at birth. She did an x-ray today. She’s such a good little girl. (Forgive the quality of the pictures as they were taken from my cell phone.)
X-rays along with older CT scans showed less blood flow in her left lung (bad lung). Otherwise her lungs looked clear. As you can still see her heart is still pushed far over to the right taking up some of her right lung space.
The plan is to start the Albuterol inhalers and Steroids at the first sign of coughing. (She normally only coughs when she has a cold.) We talked about possible use of oxygen at home. The doctor wants to see her de-stat and monitor her first. I can’t say I’m surprised. I’m praying that doing these two measures will help calm the beast before the storm so to speak. I do worry so much about her with every illness. She is just so thin.
We also got to see our wonderful NP Josh from Surgery today. I can’t say enough great things about this guy. He’s been such a gift from God to our family. I don’t know what we would do without his deep care for Ava. It’s great to show her off when a lot of what he saw of her was sickness. God’s so good.
I’ll leave this photo of her this morning…. all Smiles!
Please keep praying that she continues to get over this cold. Next week she takes her test for Kindergarten. I won’t even go on about my anxiety over this yet. Thanks for all your wonderful messages of support and love!
~Terri
2 comments:
Glad she is ok....but hate that CDH still causes our babies more problems. Thanks for the update...I was a bit worried about Ava the other nite.
yes, God is good
I just was searching for blogs of mothers with CDH babies. My sons baby is about to be born in 6 weeks with CDH. I had never heard of it before now. we are all scared and worried for our baby jacob. we have a wonderful shower planned for him for this sunday. So much apprehension about what to buy! Anyways, Im looking for blogs with stories about cdh kids and am glad to have found yours. do you know of any others as well? I want to have a list of them to give to vanessa (Jacob's mom). I think she is going to need to be able to connect with some other mothers who have been in the same situation. Jacob is coming to us with not only CDH but also with some heart defects. We dont know how severe yet. please keep Jacob in your prayers.
Your daughter is beautiful! I'm looking forward to going back through your blog to read about her.
have a great day
vivian
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