Today is a wonderful day. This was the day Ava was born. I remember being so terrified of all she would have to endure. She was not allowed to take a breath on her own. As soon as she came out she was lifted up so Brian and I could see a glimpse of her then she was whisked away quickly to the adjacent room. She was hooked to so many tubes and wires. We prayed so hard she would survive. We knew her odds were not that great but we also knew that God was in control. No matter what happened this was our daughter and we were doing ALL we could to save her.
More times that I want to count we nearly lost her. I remember leaning over, looking at her tiny body. I made a vow to her whether she lived or died I would do all I could do to make others aware of what Congenital Diaphragmatic Hernia. This birth defect does not discriminate. AND still to this day the survival rate is only 50/50. Each time I hear of another family getting this diagnosis my heart drops. We know the pain. We know the fear. We know the hope that exists in the soul of the parents, family and friends.
I decided to do another video to celebrate Ava’s fight this last year. She has been such an amazingly, strong little girl. She absolutely loves life. I am honored to be her Mother. She has made me pay close attention to details and to never take a single moment for granted. In this video you will only see her happy and smiling face. Ava gets very sad when she sees pictures of her sick. (me too) SO this is a fun video celebrating all she has accomplished.
5 comments:
Happy Birthday AVA! I have a package for her. I have been meaning to mail it but never get to the post office in time. I will mail it this week. Please give your little princess a hug and a kiss for me! She is a beatiful gift from GOD.
Happy 3rd Birthday, Ava!!!!
I have tears in my eyes typing this - what a remarkable wee girl - Happy Blessed Birthday Ava!
Hi, it is Shane. I know it has been a while. I just wanted to remind you of what an inspiration you have been for Liz N I. Happy birthdy to your little girl......what an amazing CDH WaRRIOR!!!! We R proud N blessed to have met you! Thanks for everything!
Happy birthday big girl. You are such a joy to watch grow. Ava, you are such an inspiration and such a brave, beautiful girl. I hope you have a wonderful third year with lots of happiness and healthy moments. You certainly deserve nothing but the best.
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