Thursday, April 24, 2008
Wednesday, April 16, 2008
Finally....
How many people take sleep for granted? I am not one of those. Since Ava has been home from the nicu she has NOT slept a whole night. In fact it was very normal for her to wake anywhere from 4-10 times a night. I would nurse her and then she would quickly fall back to sleep but it sure killed my sleeping patterns.
Well Brian and I moved her to her own room last week. She still would wake but less often. Tuesday night she only woke once. I awoke to a refreshed new person. (Myself) I felt like I came out of a ca coon. Now last night I stayed up pretty late. I couldn't get to sleep. It could have been because Brian was snoring loudly or the fact that Ava was no longer in my room. Call me crazy but I still loved to hear her breathe. So I got little sleep. But when I finally woke up at 6:45am I realized she had not cried all night LONG. I am so shocked.
Finally after 19 and a half months she slept through the night. God is still in the Miracles business. So now I am expecting great things out of this little Sleeping Princess.
The sun is out today here in Iowa and I am going to take Ava on a stroller ride. Maybe after she wakes up for her nap. Yes she is sleeping again.
Perhaps I can become a normal person now that I can SLEEP all night long!
Well Brian and I moved her to her own room last week. She still would wake but less often. Tuesday night she only woke once. I awoke to a refreshed new person. (Myself) I felt like I came out of a ca coon. Now last night I stayed up pretty late. I couldn't get to sleep. It could have been because Brian was snoring loudly or the fact that Ava was no longer in my room. Call me crazy but I still loved to hear her breathe. So I got little sleep. But when I finally woke up at 6:45am I realized she had not cried all night LONG. I am so shocked.
Finally after 19 and a half months she slept through the night. God is still in the Miracles business. So now I am expecting great things out of this little Sleeping Princess.
The sun is out today here in Iowa and I am going to take Ava on a stroller ride. Maybe after she wakes up for her nap. Yes she is sleeping again.
Perhaps I can become a normal person now that I can SLEEP all night long!
Thursday, April 10, 2008
God hears our cries.
Have you ever wondered why things happen the way they do? I believe all things happen in life for a reason. It is definately hard going through hurts and painful tribulations. I have faith and am aware that it all helps you to become the person we were meant to be.
You know with Ava diagnosis of Congenital Diaphragmatic hernia I thought my world was falling apart. Before Ava I lived this life of peacefulness and mondane living. I thought death was living a full life and then passing in your sleep. Nothing prepared me for being told I would soon be having my daughter and expecting her to pass away gently to Heaven all while in my arms.
Even now when I look back on all that we have been through with Ava I still would do it again in a heart beat. How inspiring it was to see this tiny baby pulling and fighting with every ounce of her little being. The stress was almost unbearable. I don't know what I would have done if I didn't have Brian. There were days I felt so helpless. I remember one in particular. I believe it was her second day of life. As I stood there near her bed my arms ached to hold her. I cried lots that day. With all of my soul I wanted to take her from all the tubes, wires and monitors, hold her and tell her everything was going to be all right. I knew this day was coming but it was hard to accept that I could do nothing for her it was all in the hands of the doctors and nurses.
I felt God's presence constantly around Ava. I knew in my heart she was being protected.
The hardest part was to pray, "Not my will, but your's Lord."
I guess what I am trying to say is that being so close to death changes how I live my life. I don't have the answer to why Ava is here with us. It breaks my heart every time I hear of another CDH baby that has gone to be with Jesus. I can't help but imagine the pain the parents feel.
I have found my calling in all this.... Congenital Diaphragmatic Hernia. Who else but me and Ava to spread Awareness and HOPE?
~Terri
You know with Ava diagnosis of Congenital Diaphragmatic hernia I thought my world was falling apart. Before Ava I lived this life of peacefulness and mondane living. I thought death was living a full life and then passing in your sleep. Nothing prepared me for being told I would soon be having my daughter and expecting her to pass away gently to Heaven all while in my arms.
Even now when I look back on all that we have been through with Ava I still would do it again in a heart beat. How inspiring it was to see this tiny baby pulling and fighting with every ounce of her little being. The stress was almost unbearable. I don't know what I would have done if I didn't have Brian. There were days I felt so helpless. I remember one in particular. I believe it was her second day of life. As I stood there near her bed my arms ached to hold her. I cried lots that day. With all of my soul I wanted to take her from all the tubes, wires and monitors, hold her and tell her everything was going to be all right. I knew this day was coming but it was hard to accept that I could do nothing for her it was all in the hands of the doctors and nurses.
I felt God's presence constantly around Ava. I knew in my heart she was being protected.
The hardest part was to pray, "Not my will, but your's Lord."
I guess what I am trying to say is that being so close to death changes how I live my life. I don't have the answer to why Ava is here with us. It breaks my heart every time I hear of another CDH baby that has gone to be with Jesus. I can't help but imagine the pain the parents feel.
I have found my calling in all this.... Congenital Diaphragmatic Hernia. Who else but me and Ava to spread Awareness and HOPE?
~Terri
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